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Showing posts from November, 2014

Advocacy Mondays- 5 Questions Answered

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by Erica Husain, UK

1.  How did you find your path to parent-advocacy 
Without conscious effort!  Grateful that anyone was out there to talk to, I joined the ATDT forum – not without a certain amount of trepidation and concern over apparent needfor a pseudonym.  “Hiding out” in public,from anyone and everyone I knew,was a leap of faith, but people here helped me.  They didn’t want my money, they didn’t require me to sign up or own up to anything much more than a name and an email address, and they offered freelytheir experience andtheir confidence that I could do what they had already done, and they offered their cheer leading while I navigated the worst thing that had ever happened to my family.  The worst not because it was the first time that a life had been threatened in it but because it was the first time that there wasn’t a safety net of clear professional understanding and prognosis, the first time that pity had not been the least that could be offered, and the first time that …

Another $10,000 Matching Donation!!! Double your donation's impact, NOW! - Families Empowered and Supporting Treatment of Eating Disorders

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Another $10,000 Matching Donation!!! Double your donation's impact, NOW! - Families Empowered and Supporting Treatment of Eating Disorders

I am pleased to announce a new, incredibly generous $10,000 anonymous matching pledge!So, if you were considering donating to F.E.A.S.T. during this fund drive, now is a great opportunity to double the impact of your gift. There are two kinds of donations that will trigger this match:1. One-time donations of $100 and up (including $10/mo payment plan), and 2. Annual recurring pledges of $50 and up. These will trigger a double match! (i.e. $50/yr =$100 match, $100/yr = $200 match) Quick Links: Visit our Fund Drive Home Page for more informationFund Drive SlideshowDonate by Credit Card or CheckDonate with Paypal

Advocacy Mondays- 5 Questions Answered by Belinda Caldwell

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1.  How did you find your path to parent-advocacy?   
When our daughter was diagnosed in 2011 with anorexia nervosa, I was shocked to my core and confounded by how much my perception of AN differed from the reality. We received excellent evidence based treatment which supported our critical role in our daughters treatment. Nevertheless, I was extremely challenged, and a bit disappointed, by the different way we were treated by our social networks and community, and my employer, in terms of support at this difficult time. Also watching my daughter struggle with shame at being thought vain and selfish for developing this disorder also made me incensed at how the focus on the thin culture as a cause of this disorder impeded recovery for sufferers.
My professional life has involved a lot of advocacy for change in the provision of health care, and for disempowered clinician groups within the health community, so in many ways becoming involved in advocacy for EDs was a natural transition, …

Why we Rely on Community Donations: A F.E.A.S.T. Birthday Celebration Guest Post by Laura Collins

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I hate fundraising. But I hate ED more.
When a group of parents around the world started the first internatonal group OF and SUPPORTING parents of ED patients we didn’t just want to copy what others were doing. We wanted to change the landscape of what families find and how they respond to these life-draining and life-threatening disorders.
We believed two things were essential:
Focus on what parents can DO. Follow the science.
We knew we wanted to be a unique voice and that we might stir controversy. For that, we needed financial independence. You see, most advocacy is funded by sponsorships by those selling services to families. This is not to say that providers would tell us what to do, or that what they do was wrong, but an acknowledgement that financial independence would leave us free to focus on the message and not keeping sponsors happy.
So, being financially independent means F.E.A.S.T. depends on the very people we represent: families. We depend on contributions from the F.E.A.S.T…

A Happy Birthday Celebration!!!

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FEAST is 5 Years Strong!! 
In 2004 a group of parents started an online community to support each other while they re-fed their children suffering from eating disorders.  In 2007, Around The Dinner Table (ATDT) became a free-standing forum with 153 members.  In 2009 F.E.A.S.T. received official non-profit status, with 651 members and became the permanent home for ATDT which had 711 members. Five years later, in 2014 F.E.A.S.T. has 4,489 members and ATDT has 6,078 members.

  F.E.A.S.T. has accomplished much over the last 5 years including the following:

Three FEAST caregiver conferences in the US International task forces efforts to collaborate on Carer’s Conferences in the UK and AUSInvitations to represent the perspective of caregiver’s at professional conferences & workshops,US congressional briefings, media interviews, ED journal articles Growth and reach of the ATDT forum – 100 new members and over 500,000 page views per month Family Guide Distribution to advocates, clinicians…